Education Advice for Parents and Carers

Choosing schools and navigating the educational system and getting the right support for your child are some of the biggest challenges we face as parents.

Chatting to others on our Facebook site about their approach is often a huge help.

Many parents / carers use this document to help teachers understand the educational requirements of KS boys: The Learning Needs of Children with KS revised

Whether to disclose your child’s condition to school is a personal choice.

I didn’t flag my child at school until year 1. Until the school approached me about his reading difficulties. I wanted to see how he did on his own in kindergarten. He is now in year two and receiving extra support (as well as education support externally, which I’ve had in place since kindergarten). I’m a VERY open parent. I don’t think there’s need educationally in childcare except where there are issues with emotions or as in my son’s case, seizures (apparently unrelated). We just need to love these little ones with all our hearts.

I made the mistake of telling kinder when we found out and then school and he has not needed ( now grade 5) any assistance at all ! I would wait to see how your little man goes.

I am a true believer that information is the key. We told everyone of Ben’s teachers and the great ones researched so if a problem came up in class they already had strategies in place to help him. We have had wonderful teachers and I believe by them knowing it has helped Ben but also helped to educate more about KS. Every one of them understands that every one is different and the wide range of things that KS can affect some but not others.

We talked to a few friends and family at time of diagnosis (my son was 7) and now that everything has settled down emotionally for us I wish we hadn’t actually. The older my son gets the more I feel it’s his business, not mine, to disclose. We told his primary school and they were great with support but I haven’t told his secondary school – I’ve told them he may need learning support, but not why. I’m teaching him to be confident about who he is and if he chooses to be open about his condition I will be happy but while he’s a teenager (now 13) I don’t think he has full capacity yet to understand the implications so right now I’m also talking to him about privacy.

We made the decision not to tell my son’s kindy or school. He is now in year 5. He Has some reading difficulties but they identified his needs and give him the support he needs based on him and not his label. That’s just our way there is no wrong way it’s whatever suits you and your little man.

Are you a Teacher or Health Provider working with someone with an X/Y Variation?

Klinefelter Syndrome is one of the most common chromosomal variations. You have almost certainly worked with someone with KS or XYY already, and you will again in your professional career. Thank you for taking the time to research how to best help and support them.

You’ll find lots of good information on the Links page, including ideas for teachers, and the most common health issues that affect XXY, XYY and associated conditions.

Please contact us to discuss specific situations and seek advice on how to assist and support the individual you are helping. We are parents and affected individuals, not professionals; we cannot give professional advice, but we can tell you about our lived experience and what we feel may help.