AXYS strive hard to reach our goals of greatly increasing awareness on the X & Y chromosome variations we represent and support. AXYS are linked with many organisations and make representations on behalf of our members to the Australian Human Rights Commission Intersex Reference Group and the Victorian Intersex Advisory Group and participate in focus groups, forums and other events about intersex awareness and education.
Disability Representative Organisation (DRO)
From July 1 2024, Australian X & Y Spectrum will become a member of a consortium of organisations that represent people with Intellectual Disability. This consortium is recognised by the Australian Government as a Disability Representative Organisation (DRO). We are a member of the Down Syndrome Australia consortium representing people with intellectual disability, with a focus on chromosomal variations.
10 Year National Action Plan for LGBTIQA+ Health and Wellbeing
AXYS was involved in the consultation for the establishment of the 10 Year National Action Plan for LGBTIQA+ Health and Wellbeing through the Australian Government, Department of Health and Aged Care.
Australian Human Rights Commission (AHRC)
- Leading the promotion and protection of human rights in Australia by:
- Making human rights values part of everyday life and language;
- Empowering all people to understand and exercise their human rights;
- Working with individuals, community, business and government to inspire action;
- Keeping government accountable to national and international human rights standards
- Website: https://www.humanrights.gov.au
Victorian Intersex Advisory Group
This Expert Advisory Groups has been established to provide expert advice on issues and specific projects that engage with the LGBTI community. The expert advisory groups are made up of community members, clinicians and relevant academics and meet four times a year.
The I in Us with Richard Bradley and Candice Cody 30 October 2025
On this episode of ‘The I in Us’ hosted by Paul Byrne-Moroney, two champions of our community, Director of Australian X and Y Sex Chromosome Support Group (AXYS) Richard Bradley (47XXY), and long-time sex chromosome advocate, Candice Cody (47XXY), shared their personal experiences of trying to access Australia’s National Disability Insurance Scheme (NDIS), a government program set up to support people with disability to access services and supports to live life free from barriers.
47XXY (also known as Klinefelter Syndrome) is an innate variation in sex characteristics that usually presents as physical sex characteristic differences, and also, physical, cognitive and psychological challenges, including learning difficulties, cognitive and physiological developmental delays, and neurodiversity.
Richard has first-hand experience trying to navigate the NDIS application process for his own needs, and through his own experience and great knowledge of related legislation, has also supported countless parents of 47XXY children to do the same.
Candice’s experience of trying to access the NDIS has been extremely challenging and unfortunately continues today.
There is nothing like hearing our guests’ lived experiences when trying to bring about positive changes for our community, and this episode is no exception.
Australian X & Y Spectrum Support Position Statement on the Health Safeguards for People Born with Variations in Sex Characteristics Bill 2025 – 2nd February 2026
Please note: Earlier versions of this document contained minor typographical errors and did not include the current section acknowledging diversity of lived experience.
