AXYS Australia is an organisation run by volunteers who have a direct link to someone with an X & Y chromosome variations. We are individuals, parents or families who are continuously working hard to support, empower and inform.

Australian X & Y Spectrum Support (AXYS) help support individuals and families living with X & Y sex chromosome variants in particular; Klinefelter Syndrome/XXY, XYY, XXX, XXYY, XXXY, XXXXY and associated variants.

We are here to increase awareness and to inform the health and education sectors and broader community on what these X and Y sex chromosome variants are and the impact it has on individuals and families and how they can better support, guide and implement appropriate tools and treatment plans. We aim to ensure that everyone living with an X & Y chromosome variant has the opportunity to reach their fullest potential living a happy life with minimal impacts from possible health related issues.

We can offer a wealth of knowledge, advice, guidance and support but it’s important to note that we are not medical professionals. We can help direct you to find the right health care professionals that can give you supportive, knowledgeable and specific advice.

What can we do

AXYS offers a wide variety of support, information and guidance. These include: a dedicated private and confidential Facebook group with members from all around Australia who can offer great support and information, we have informal casual catch ups, an annual information seminar, annual AGM and one on one phone or email support. We are here to offer what support and information you need.

Individual rights

At AXYS we recognise and respect everyone’s individual rights and celebrate the diversity of the human family, including sex and gender, skin colour, ethnicity, religion, sexual orientation, gender identity, age, socioeconomic status, physical characteristics and mental abilities. We respect the rights of individuals to self-identify as they choose in gender and sexuality. We embrace the great diversities of living with an X & Y chromosome variation and endeavour to ensure all individuals feel supported.

Our Team

Anita is the mum of three gorgeous boys with KS (47XXY). Her career as a Nurse Manager is paused while she works hard to get the right support to ensure the boys receive the maximum early intervention so they can thrive and live life to the fullest. She leads prenatal education and support for parents of younger children at AXYS.

Susie V has a son who was diagnosed 47XXY when he was 7 following language and processing delays. She has attended the US Parent Conference in Denver, Colorado and built her learning there on X&Y conditions. She looks after communications and parental support for AXYS in Australia.

Our Board

AXYS are in the final stages of becoming a NFP organisation. Once this has been finalised an up to date list of all board directors will be available and visible here.