Daniel’s Story – XXXY

January 10, 2019 Motherhood is tough. It hasn’t been easy for me. The caring, nurturing, looking after has been a breeze, it was becoming a mother that was difficult. Having suffered from endometriosis, I...

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January 10, 2019 / Comments (3)

Living with my X

October 25, 2018 I was the third child in my family, my brother 5 years older and my sister 18 months older. My mother was a qualified nurse, my dad, however, deteriorated with a mental illness which...

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October 25, 2018 / Comments (2)

Noah’s journey with XXY

October 15, 2018 I am writing this from a mothers perspective if that is ok. Noah is aged 5. When Noah was 2 weeks old we nearly lost him. His tiny wee body was starting to shut down. He was exhausted, and...

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October 15, 2018 / Comments (0)

Ryan’s Mission to Build a Klinefelter Community

October 5, 2018 When Ryan Bregante sees statistics estimating that 1 in 500 males has the extra X chromosome that causes Klinefelter syndrome (KS), he is acutely aware of his minority status as the “1”...

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October 5, 2018 / Comments Off on Ryan’s Mission to Build a Klinefelter Community

Louise’s Story – Our Prenatal Journey

August 30, 2018 Our journey began after 6 years of IVF . I had decided not to go one more round and my husband Pete decided we would (yay for Pete) we received our early positive pregnancy result. It...

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August 30, 2018 / Comments (0)

Lucy’s Story – A prenatal Diagnosis

August 30, 2018 I had to arrange my 13 weeks scan privately and Sydney UltraSound for Women recommended the NIPT test. I willingly had this due to the greater accuracy for Downs Syndrome… this was my...

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August 30, 2018 / Comments (0)

Angela’s personal prenatal diagnoses story

August 30, 2018 We had done IVF for a few years and at the age of 41 and 42 my husband and I came to the decision that we would stop and accept that it was very unlikely we were ever going to be parents. I...

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August 30, 2018 / Comments (0)

Paul’s Story – Advocacy of XXY

August 3, 2018 A personal story from an adult living with an XXY diagnosis....

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August 3, 2018 / Comments (0)

Sam’s Story – An XXY Kinda Guy

August 3, 2018 Hey, so I’m Sam, I’m 24, found out I had XXY when I was 23, since finding out I’ve made it my passion to help others and educate myself and the world on what we have,...

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August 3, 2018 / Comments (0)

Our XXY Journey – Sally’s story

August 3, 2018 I still remember that phone call only a couple of weeks out from Christmas where my husband and I were chasing the results of our NIPT test. We really just wanted to find out the sex of our...

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August 3, 2018 / Comments (1)